We're Home!

I just wanted to let everyone know that we are home and safe. We are together again and couldn't be happier. Noah is currently sleeping in his new bed for the first time. I can't wait until I am in mine.
Much Love,
~Crys

Going Home

Here is my post from Memoirs of a Mommy... (since I need to go pick up Shane from the Airport and don't have time to re-type.)

~I can't believe the time has come.

We are going home Saturday morning. We have been here in Denver at the Ronald McDonald House since June, shortly after Noah was born. That seems like such a long time ago.

Since Noah came home from the hospital, we have developed some sort of Life Routine. It's been less than wonderful having us all in one room but we have managed, and managed quite well if I do say so myself. I truly believe the Lord has helped us adjust and find some sort of comfort here. So, while there are some things I will miss (All the wonderful people at the RMH and TCH, Boston Market, and the best eye brow estitician I have ever found) I could not be more excited to finally be making the trip back home.

I don't look at this past experience as a trial or a challenge. This has been life. My life. And life is full of ups and downs and walks and runs and all I can do is roll with it. I don't ever want Noah to think his life was my trial. And I truly don't feel that way. I love him more than I ever could have imagined. Shane and I fought to bring Lilly to this earth, and we fought to keep Noah here. These are our babies, our life, our legacy. And being a mom is the only thing in the world that I could ever want to be. So I will take it all. The good with the bad. Because only then will the good be so sweet.

Anyways... back to the point of this post. Shane is coming tonight. We are going to one last clinic appointment here at The Childrens Hospital, packing, then going HOME!! Then, I am taking all next week off of work and focusing on my family and enjoying our time together. So, it's unlikely that I will be posting. I might be able to get on and post a little, but just in case I don't, now you will know its because GOOD things are happening.

Much Love to Everyone!!

~Crys

Here are a few recent pictures of Noah:

He's SO cute when he's sleeping. Look how he snuggles his little teddy.

He love's playing with his toys.... and his tongue.

He didn't like the flash from my camera.

Isn't he the cutest EVER!?!?!

Noah and Friends

This is Mackenzie and her new little brother Braxton. We met Kenzie at the RMH. She recently had a Heart Transplant too. And they are from Utah!! So we are looking forward to seeing them again soon.

I've posted this picture of Noah before but here it is in larger format so it's easier to see. It's just TOO cute!! Man, he sure was mad at his Dad for harrassing him during bath time. But what are Dad's for?

A Blogger Award

I've recently been given a Blogger award by Leeann at The World: Through the eyes of me. She nominated me for Noah's Adventure but since I try to keep this blog limited to adventure related topics, I posted the award at my other Blog Memoirs of a Mommy. Please go check it out and see the cool blogs I nominated.
Thanks Leeann!

Some New Pictures

Noah and Daddy two weeks ago. Noah rolling over... I guess he really wanted that Sugar Shot.

Noah and Daddy on Daddy's Birthday (the 11th). Noah two weeks ago with his new blankey... he loves this thing.

YES!!!

Noah has made some HUGE improvements this week! He has started eating 3-4 oz by mouth and being able to go about 3 to 3 1/2 hrs between feedings (longer at night). This is really good because since I took out his NG tube, he has only been eating about 1 1/2 ozs every 2 hours, even at night.

Today, Noah also ROLLED OVER for the first time!!!! I couldn't believe he did it. He also finally started reaching for toys. Shane brought Lilly's play gym so we could hang some toys up for him. He laid under it and reached and grabbed the toys for over an hour. Just as content and happy as can be. I think that since he's eating more now, he finally has the energy to do these extra things.

His swallow study is on Friday so we can learn more about his lungs. I hope that his aspiration has stopped by then but we'll see. I'm not going to stress about it until we have more data. Then we can make a decision. All I care about right now is that he is doing SO GOOD!!!

When we go home (IN TWO WEEKS!!!!) our new Transplant Cardiologist will be Dr. Everett and our Transplant Coordinator will be Emily. They just happen to be in town next week to see the new hospital and learn more about how Childrens does their transplant program. And it just so happens that Dr. Miyamoto (Noah's current Transplant Cardiologist) is friends with Dr. Everett. (Dr. Everett was the one who sat down with us and told us that Noah would need a transplant. She was VERY compassionate. I think we will like working with her.) Anyways... the point of mentioning this is because they will be coming to Noah's next Clinic Appointment on Monday. I'm really hoping that they agree to work closely with Childrens in Noah's care. I've come to really trust Dr. Pietra and Allison and don't want to lose the history that we have. Plus... there are only a few other people in the Country with as much experience as Dr. Pietra. So I definitely want the best for my little man.

I've posted more pictures on my Flickr website. So definitely go check them out. The link is off to the left title My Pictures.

In Honor of Wordless Wednesday

Check out my other blog for my real Wordless Wednesday Post. (these pics are before we removed the tube)

My Little Fattie!

Noah now weighs about 11 lbs 5 oz. He gained weight!! And Allison was SO surprised that she even gave me a High Five! We are going to try and adjust some meds so they are easier for him to take and she even said that if he were to lose next week, we could still stay tube free for now. Since it might take some time for his body to self adjust. But he is doing super!

I did tell her that once we do the swallow study, if it shows he is aspirating, that I want to know WHY. Because there are two things that are NOT an option. One.... No more NG tube. EVER! And Two.... I don't want Stopping Feeds to be a treatment. If he is aspirating then we need to know why and we need to fix it. If the nerve by his vocal cords was damaged during transplant, then we need to know what we can do to fix it. If we have to... we can do a G-Tube because Breathing is more Important than Eating (by mouth). But that needs to be a last option. He's doing SO well that I DON't want to take that from him.

Much Love,
~Crys

P.S. Please check out my Memoirs of a Mommy on a RMH update.

No NG Tube Update

It's Sunday evening and Noah is still doing well without his tube. But tomorrow will be the big day to see if he's eaten enough..... (I sure hope I haven't damaged his lungs more by doing this.)

No NG Tube

Noah took out his NG tube Friday afternoon (he must have known I was going to do it anyways). I haven't put it back in. He's eating and taking his meds (with a little trickery). I guess we'll see how well he's doing on Monday when we weigh him.

Unfortunately, I think he might be aspirating (but his reflux is gone... went the way of the NG). So, we'll see what happens with the swallow study and then we can decide what if anything needs to be done....

But can I just say... He is one cute baby! And even cuter with one less tube.

I'll post more pictures soon.

Making a Decision

If you have read the last post, then you have a pretty good idea what is going on with his lungs. Or, you know as much as we know. The question now is: do we let them do the swallow study and possibly risk having to have a G tube that goes directly into his tummy that will then cause additional problems with his desire to eat. Or Do we scratch the test, give him some time and hope his lungs heal. But see the problem is if we don't do the test, pulmonary wont treat him anymore because they believe the problem is aspiration. Either way just doesn't seem good.

The NG tube is irritating to his throat and cause extra swelling, it also keeps the valve at the top of his stomach open which allows him to reflux, which he could then aspirate. The G tube would put us in a situation where we weren't able to give anything by mouth (for fear of aspiration) so that we could give his lungs time to heal, but then he has a tube going through the skin, into his stomach. You risk infection and who knows what trouble we will have then when the time comes for him to start eating by mouth again... If you take out all his tube and just feed him by mouth (I don't think he aspirates when he does this), he won't eat enough. Then he needs all his meds by mouth and they are SO nasty that once he has it once, he won't eat the rest of the day. And I HAVE seen him aspirate his meds. Then to top it all off... say the study shows he does aspirate a little. But what if that isn't causing his lung problem. What if its something entirely different but because we got a positive, they only treat for that and don't diagnose the real problem???

I am at a complete loss. The Transplant Team doesn't want him to have it done, but the Lung Drs and OT do. And I just want to do whats best for my baby... I would say lets do the study ad just see... then I can make a decision on what type of treatment. I'm the mom. I don't HAVE to do what they want... but you can see how ridiculous that sounds.

If anyone who reads this has experience with this sort of thing or can give me a different perspective, I would greatly appreciate it. I need some extra advice to help me make my decision.

Shane and I have been praying about it. And we know the Lord will help direct us to make the right choice (He hasn't let us down yet). But other people's input can help guide us to that choice. So thank you in advance.

Dealing with his Lungs

Constant Reader: First things, first. I am very sorry for the delay between posts. As you know, Shane came to visit for our anniversary (5 years!!) and then my parents and sisters came to visit. Then add in my 20 hour work week and the new 30 minute commute to get to the new Childrens Hospital... and well you get the picture. Now on to the good stuff...

Today Noah had an appointment with the Respiratory group (aka Pulmonary Clinic). It was interesting to say the least.

His appointment was at 4pm. So I left about 3:15 and got there around 3:45. I was put into a room about 4 and waited for an entire hour before anyone even bothered to come by. Now, they didn't forget about me. The door was open and people kept walking by... good thing I had my iPod Touch with me. I watched Wild Hogs so I really wasn't very annoyed. Then one of the staff comes in and does an O2 sat test. What that means, is we checked his oxygen saturation on his current level. Then we turn it off and then we see what it needs to be at to be 100%.

Since I always like to know details... those of you who are interested in knowing the details, please continue. If the numbers make no difference to you, go a ahead a skip to the next paragraph: Noah was sent home from the hospital this past time on 1/2 a liter. After a while we went down to a 1/4. He did well on that so a few weeks ago we tried an 1/8th. But I noticed after about an hour or if he ate that he looked sick and sweaty and his color was off. So I put him back on a 4th. This past week he's been sitting around 95-97% saturation on a 1/4 at the clinic visits but when we went to the appointment today he was 100. So we turned it off. He dropped to 88. We went back on a 1/4 and he went up to about 90 and that was about it. So we turned it up to 1/2 and he went up to 98. When we turned it back down to 1/4 he started to drop again. So basically what that tells us is he needs to be on 1/4 but if he goes without for a while then he needs the 1/2 to stabilize then he can have 1/4. I mention all this detail because it's funny. This is exactly what I have been doing for him. For example: I unhook him for his bath and afterward, I put him on a 1/2 for about 1/2 an hour and then back down to 1/4. It just seems he does better this way. So to actually see the numbers prove that I've been assessing his needs correctly made me feel good. (maybe I can actually do this!!!)

Anyways, after the sat test, I was told the Dr wanted him to get an X-Ray so I needed to go down to Radiology. Now, I still haven't even seen the Dr and it's about 5:30. So I head down, get the X-Ray and go back up to our room. The place is deserted except for the cleaning crew who are going room to room. The nurse then comes in and takes a history and the Dr finally shows up. It's now 2 hours past our appointment time and I am finally meeting her. (She is wonderful by the way).

What we decided was that Noah might have a few things going on. First of all, he has 2 areas (one in each lung) that are "wet" or filled with fluid and not oxygenating his blood. One of these areas has been around a long time but isn't healing. The other is a new development. This might be caused by aspirating (or breathing in) fluid when he tries to eat. He still isn't doing so well on the oral feeds and this could totally be a possibility. I also know he really chokes when he gets meds by mouth so that could be it also. So we are going to do a swallow study and see what that shows. There is also the possibility that a nerve near his vocal cords was damaged during transplant. This can cause swelling and aspirating etc. When they took pictures of his lungs with a camera down his throat (broncing) they didn't see this area because they went down his vent tubing. So depending on what the swallow study shows we may have to do this again without a vent tube. But the overall consensus was that we will probably need to back off on the oral feeding until we can get his lungs healed.

Think of it this way... Winter Viruses can be deadly for babies with healthy lungs.... Now imagine a baby with sick lungs getting these viruses or even just getting sick... Not a good picture. So Noah does qualify for the RSV shot (which I just happened to ask for yesterday) so he will be getting that. And now there is a possibility that he will need a G tube instead of an NG tube (goes directly into his stomach instead of up his nose and down his throat) since we need to back off on the oral and because the tube can irritate his throat causing more swelling. We also just need time. Because his new heart was bigger than what a heart his size should have been, it is also putting pressure on his air way and we just have to wait for him to grow into that.

So, as of right now, it doesn't seem that he will be getting off the O2 anytime soon. But at least we will have a better plan of attack and at least have a plan before we come home so we don't have to start all over. I was also told that all the Respiratory Dr's at Primary's came from Denver Childrens so she knows them all and they are great. So that's good.

Other than that.... we are just plugging along. Waiting for October to end so we can be home. Noah really is doing good. He has his struggles still. But I couldn't be happier. I can deal with a slow recovery because at least I have my baby here to recover. I have no doubts that he will heal completely and get over all this stuff. It's just going to take some time.

But for those of you who are reading this from Utah (aka Family, Friends, etc) With Noah being immune suppressed AND having sick lungs.... our protection from germs needs to be even more diligent. While we have missed you all so very much and we absolutely can NOT wait to see you, please keep Noah's Health in mind. We respectfully ask that you post-pone your visit if you are sick, think you are getting sick, or have recently been around anyone who is sick (even if the cold seems minor). And then when you come to the house, please make sure that washing your hands is the first thing you do. Hand Sanitizer is now our best friend and a requirement to hold Noah. I hope no one is offended by these "rules" but they were given to us by his Dr's. And since even a small cold could lead to devastating events, we have to keep Noah's best interests in mind. I am sure you all understand. I plan on doing my absolute best at keeping Noah at home for the entire winter so if we aren't able to come to an event, please forgive me. He has been through so much that I just can't imagine him having to be sick or hospitalized again....

The count down to coming home begins.... 23 days to go.

Much Love,
~Crys

Noah the New Hearted

My favorite blogger Jenny created this wonderful tribute poster for Noah... (yes, she is an Angel). It looks a little small on this page so just click on it and it will become bigger so you can read it.

P.S. Don't forget to stop by Jenny's blogs and leave her some love; aka comments! Jennyupthehill and GusGang.

Noah's Progress

Noah is doing great! We are slowly weaning his O2 and hope to have it off before we go home. He's making huge progress with his physical Therapy. We had an appointment today and don't go again for 2 weeks but his Therapist said she wouldn't be surprised if he rolled over by then. And today we made MAJOR progress on eating. Last Thursday at his eating therapy we tried a new bottle. It's the type of bottle they use on infants with a cleft palate. It's just easier to suck and has a variable flow. But its been working good. He's been using it off and on all weekend but hasn't been able to take a full feed from it. Then I made the mistake of giving him some meds in his mouth (I really wanted the feeding tube gone) and that made him so mad his puked and wouldn't even let me put his paci in his mouth the rest of the night. So I've decided to work on getting all his feeds by mouth before trying the meds. Then today, he woke up from his nap and took his entire feed (all 80 cc's) by mouth!!! He had to burp a few times and needed a sugar shot several times, but he actually ate the whole thing and in only 20 minutes! I was so proud I had to call Allison and his OT Therapist and brag. What a good little boy! So we are definitely on our way to being tube free.

Also, our current GO HOME date is scheduled for October 25th. We'll go to clinic in the morning, be cleared by the afternoon if all is well and we will drive home the next day (the 26th). The idea of "home" has become such a figment of my imagination. I almost have to ask myself if it's really there. But I am SO excited...

One more thing.... I recently found out that my Aunt Ann is very sick. She had to have surgery and there were some serious complications and she can no longer talk and is paralyzed. I don't have many details, I just know she's in serious need of blessings. Please keep her in your prayers. She is such a wonderful sweet woman and her family loves her very much. And I would very much appreciate your prayers on her behalf.

Much Love,

~Crys

My Baby is a Junkie

Since Noah was on a vent for almost the first two months of his life, he never got to taste anything. When he was allowed to eat, it was through a feeding tube. So the only thing he ever tasted was Nystatin. They give it to him to prevent Thrush and he had to stay on it for a month post transplant too. Well... it just so happens that every baby HATES it but wouldn't you know, Noah LOVES it. But, who can blame him when it's the only thing he got to taste.

Well, while trying to get Noah to suck on a bottle we discovered that he would but only if we put some Nystatin in his mouth first. Then he would suck on anything. A bottle, a Paci, yes... that too... ANYTHING. So we kept using it even past the cut off date trying to get him to eat. Well... I kept trying to stop using it and he was too smart for that. He knew what he wanted and wouldn't give up till he got it. So I decided to make some sugar water and see if I could switch him to that. For a few days I did both Nystatin and then Sugar water and back and forth. Then I stopped the Nystatin completely. He hasn't used it in over a week. Good right? Well, yes... but then we now have the problem of the Sugar Water. The little Bug loves it so much that he uses more of it then he ever did the Nystatin. He is actually smart enough to spit out his Paci and then not let me put it back in his mouth until I give him a shot (a small drop with a syringe). Now, I realize that I am helping perpetuate the problem since I keep giving it to him. But I figure he's been through a lot and he deserves a little comfort and a treat to help make up for it. But sooner or later he needs to stop. I don't want him to get diabetes or something. Or rot his teeth when they finally come in. But for now.... I have to accept that Noah is a Junkie. But I guess after all the pain meds and sedation he has been on for so long, he could be addicted to much worse. I can't really complain about Sugar water..... until he spits out his paci in 2 minutes wanting another shot. *sigh*
~Crys

P.S. But you just have to see him after he's been sucking on his paci for a while. His whole face is covered in Sugar Water. It's so cute! Since the Neoral (his main anti rejection med) causes hair growth, he has a little mustace and chin hair and it just gets stuck to his face and covered in dried sugar. Makes for VERY sweet kisses.

A Faithful Man

When Dee Dee told me that Noah would need to go back to the Cath Lab, I cried. I was so worried. I told Shane we needed to pray that everything would go ok and that Noah would be alright. Shane's response? "Forget that! I'm praying he won't need to have it done."

Well, I married a faithful man. Noah's cath visit was canceled.

We went back to Clinic on Thursday and he was doing great. Allison could feel his pulses and his top and bottom pressures were not too off and his O2 sats were great top and bottom too. So, she consulted with Dr. Pietra and he said to keep it scheduled but to come in the morning and he would examine him and make a last minute decision. So Friday morning came and Dr. Pietra looked at him and felt his pulses and canceled it. YES! I was so happy and relieved that I was almost giddy.

Now, he still has a Co-Arch, that hasn't changed. But the thought was, according to the echo's its not terribly bad yet. So the pressure mean is about 20-25. When going off pressures they don't go to Cath until it's in the 40's. Then if they were to balloon is, how much of a difference would they make? Taking it from 20 to 15? That's not enough to risk a cath. But since they couldn't feel his pulses they thought they didn't have a choice, but since they really are there... there isn't the urgent need to rush treatment. There is still a possibility that it will need to be done in the future, but there is also a possibility that as Noah grows, so Co-Arch will get bigger and not be as narrow.

One thing I did find out was that the narrowing isn't at his suture site. It's on the part of his Aorta that he was born with. This upsets me because I was told that they thought one was there and that they would use the donor aorta and replace that region as well.... guess they didn't. But I need to ask more about this because I'm not quite sure.

A few other interesting things to note:
~ Baby Beckham is now HOME!! That's right! 3 weeks after his heart transplant and he is doing great! No oxygen, no feeding tube, and only 2 meds. Talk about a living miracle! You can see this cute little bug at his website. Click Here.
~While reading Beckhams update, I discovered his has a similar symptom that Noah has been having... he doesn't pee for 8 hours or so, and then totally wets through his diapers. It was discovered that Beckham has what is called Hydroceles. What this is I have NO idea.... yet... I need to Google it and do a bit of research. But I mentioned this to Allison and we looked it up in her medical book and we now suspect that Noah also has a communicating Hydrocele. (THANK YOU Scadlocks for the information) I tried to make an appointment with urology but the soonest I can get in is Oct 24th and I hope to be packing to go home around then so I am going to wait and make the appointment at Primary Childrens in Salt Lake. The urologist that Allison consulted with said that wasn't a problem because they won't operate on that anyways until 6 months. (I am hoping they say he doesn't have it though cause I really don't want and Noah doesn't need any more surgeries). But I finally found out that he can be circumcised but not until he is one. Then he will have a surgery for it. But to avoid increasing his risk for rejection, they don't want to do anything like that until he is one year post transplant. No biggie
~I want to send a HUGE thank you to those of you who have prayed for Noah this past week. I am so sorry this post is so delayed. I had the lucky pleasure of my parents visiting and then I had to go back to work (yes, I am now working from Denver) so my time has been limited. But rest assured, it was your prayers, faith, good thoughts, and love that have once again given us a miracle. I love you all!
~Crys

P.S. Noah now has his own website. The new link is www.NoahsAdventure.com but you can continue to use the Blogspot one if you prefer. They will both take you to the same place.

Totally Terrified

It was decided on Tuesday that Noah needs to go back to the Cath Lab to have his Aorta ballooned....... I kind of suspected it in the deep dark recesses of my mind. The place I wasn't willing to listen to but sensed was there. But when they told me Dr. Pietra said Cath Lab, I still cried. Allison was off that day and Dee Dee had to tell me. She wasn't able to feel his pulses in his feet or his groin and with all the additional symptoms (blood pressures and O2 sats etc.), Dr. Pietra didn't even need to see his recent Echo to know his Co-Arch was getting worse and it needed to be fixed.

Dee Dee didn't know how terrified of the Cath Lab I am since I haven't been able to work with her since we first got to Denver. So I told her how I was feeling and that I needed her to explain to me how important it is that we do this and that we do it now vs waiting. Her response is that its getting worse and fast. While there may be risks involved (tearing a whole in his heart or ripping the Aorta or even weakening the area that is ballooned which eventually leads to a rupture) he would die without it. So he may die fixing it, but he will definitely die without it.

To explain it better, his lower half isn't getting enough blood because the part of his aorta that was sewn to the aorta of the new heart is too tight and narrow. His heart is working harder to push blood through the narrow part so his heart muscle is getting too thick. And, the blood pressure to his head and upper part of his body is too high. So he's getting bad headaches and his lower body isn't getting enough blood to heal (the villi/stomach problem, his kidneys due to the immunosupressant drugs, his horrible butt rash (which I know believe to be a bile burn, Thanks Jenny!!)). So I have a very upset, cranky, sick, and unable to sleep baby but who is also the CUTEST little bug I have seen since Lilly was little. Man... I have no idea what genes my kids are getting but they sure are cute! (I'll post new pictures as soon as I can get the Internet loaded back onto my laptop which has an SD reader. My work computer doesn't have one.)

So, the current plan is Friday at 230pm. But I am praying that at Clinic tomorrow they will have changed their mind and decided its not necessary. Otherwise, they are hoping to get him in even sooner so who knows. All I know is that I am so scared I have been sick since yesterday. I have faith that my Heavenly Father will bless my baby. And I still believe that now is not Noah's time to leave this earth. But I am still frightened at what can happen. At the pain my baby has to bear. At the possible bad news I will have to hear. I've never gotten good news from a cath visit but it has almost killed my sweet precious son. But somewhere in my heart I do feel that this will be the last step toward his recovery. That once this is fixed he will be able to finish his healing and start on his new road of life. I just need to let myself listen and feel it and not be afraid. But for now, I'm still praying..... and HARD.

Please keep him in your prayers. They helped before, they will help now. I will never be able to fully express my gratitude to my family, friends, and even the people I haven't met yet who have prayed for my little man. Please know that you will always be in my prayers.

Much Love,

~Crys

No Tubes!

But only for bath time.

Da Poop Stinks 2

The reduction test came back and it turns out that Noah has an intolerance to carbs. This is why he has such bad diareah and gets so upset when he eats. He doesn't feel good! The GI team said that he most likely got a virus that killed the villi in his intestines. They will eventually regrow but it can take several months. Yes, my mouth hit the floor on this one. Several more months of fussiness, not eating, upset tummy, and the worst diaper rash I have ever seen. I don't think it can be classified as a rash. It looks much more like a burn or open sore. But the only treatment is to continue to feed him through it until he gets better.

They also finally officially confirmed that yes, he does indeed have a Co-Arch. This is where the new Aorta was sewn to the old Aorta. It becomes thin and weak, so he has less blood flow to the lower half of his body and more to his head.... There is a gradient difference of about 20. If it nears 40, that's when they will have to go back in and balloon it.... I pray that doesn't happen. You should all know how I feel about the cath lab by now. There is a possibility that he will outgrow it. So... GET FAT NOAH!! That's my new moto. :)

Other than that, he's doing great. Lilly and Noah both had Feeding Therapy today. It went well. I chatted with another Heart Transplant Mother from Kansas. All I can say about that is.... Transplant is hard.

Shane comes in tonight and then we don't have another Clinic visit until Tuesday due to the Holiday. So hopefully the weekend is uneventful and fun... I'll post another update on Tuesday after his visit so you can stay updated on his progress.

Happy Labor Day! I love and miss you all.

Da Poop Stinks

Still no word on the poop samples. Most came back negative which is good. The one we are still waiting on is the reduction test. This tells us if he has a hard time tolerating carbs, or proteins, or something else. We sent the sample in but then it got lost in the computer (the order not the sample itself) so I had to deliver a new cup yesterday. We should find out more about it tomorrow at clinic.

Clinic has been tough. It's so early when you have been up all night. I set my alarm and I still end up sleeping through it and waking right when I should be leaving. I've gotten there in time but without makeup or my hair combed. Owell.... Allison doesn't seem to mind.

Everything else here in Denver is going alright. Tomorrow will be TWO weeks since Noah was released from the Hospital. I can't even begin to tell you how happy that makes me. It's SO wonderful having him here. The ONLY thing missing is Shane. But, he's coming out again tomorrow night. Which is good. I miss him SO much. This past two weeks has gone by SO slow. But he gets to stay an extra night and goes home Monday night instead of Sunday. Then my parents are coming for a visit on Thursday night. They only get to stay until Sunday morning but I couldn't be more excited to see them. I miss my family and I miss my friends. While to some degree I have become more comfortable here, it isn't the same. So, I am VERY happy they were able to work it out and come see us.

Some more great news, our cousins the Scadlocks have posted an update on Baby Beckham and he is doing wonderful. I know they would love some encouraging words over at their blog.

One last thing... I recently met a young girl name Crystal here (it gets crazier) who recently had a skin graft because she got Flesh eating bacteria from going to a water park with a sliver in her toe. She almost lost her leg but they were able to save it after cutting out the infection. I felt such a bond to her because she almost lost a limb, I almost lost my foot, we both had skin grafts, we are both blond and about the same age (she's probably about 16 or so) and to top it all off, we have the same name. and mental note to self.... check for open wounds before swimming in a public pool.... gross!