Thursday, March 27, 2008

Today's Clinic Visit

Noah went to PCMC for his Transplant Clinic again today. And ALL IS WELL!!

His echo looked great, his heart and lungs sounded great, his blood pressure is good, his profusion is good, he is gaining weight, all the nurses LOVE him and his hair.... do you want me to go on? His cyclosporin level is perfect. On the new testing its 92 which is anywhere between 120 and 180 on the old testing. Denver wants his level between 100 and 150 so I think we are close enough. Now, we don't go back for 4 weeks!!!

His poop is also normal now. I don't want to jinx him, but he hasn't had a mucous poop in FOREVER! He's eating baby food solids and doing so well I am thinking of starting him on some finger foods and seeing how he does.

He is rolling over and standing up great, but he refuses to sit up. He has the muscle strength but is lacking the know how and coordination. So we are uping his OT visits from once a month to once a week. I still haven't heard from his PT since January and I even requested a new therapist but haven't gotten an update.

He is saying dada and lots of ga's but that's about it... beside his screaming. And yes, I said SCREAMING! He doesn't cry (all the time) but he does SCREAM if you are not paying him the attention he thinks he deserves.

One nice treat at his clinic appointment today was I finally got to meet Kaidence and her Mom Shauntelle today. We happened to run into them and can I just say... Kaidence is SO cute!! She is adorable in the pictures on her blog, but she is even cuter in person (She takes after her mom who is beautiful)!! I wanted to squeeze her... but being a heart mom I know all about HANDS OFF!!! Shauntelle was also so very nice! It was such a pleasure to finally meet them. I wish them the best of luck as Kaidence has been having some issues with her white blood count. OUR PRAYERS ARE WITH YOU SWEETIE!!

I also got to see Monica and Mackenzie again (our Heart Transplant buddies from Denver. They were at the RMH with us.) Mackenzie is looking SO good. She promised she would come over and play with us sometime soon. And it was wonderful to chat with Monica. I really like her. And her hair looked so great today! She has the best natural color!

So, that's the Noah update. He really is doing SO well.... I couldn't be more grateful to my Heavenly Father for blessing us with so much. And to everyone for your continued prayers and faith on our behalf. It really has helped us through this past year and given us the strength to make it through life's bumpy road.

Much Love to All,

Monday, March 17, 2008

Thursday, March 13, 2008

It Came

Noah FINALLY has a tooth!!

Wednesday, March 12, 2008

I'm a Slacker

I'm a slacker. I still haven't taken any pictures yet. But since I have the rest of the week off work, I will get some taken and posted this weekend!

So you know, though, Noah is doing great! He's eating like a champ. Once I started mixing in fruits and veggies with his oatmeal... he will eat them. So I figure I will give them a try by themselves again soon.

He's rolling all over the place and when he's on his tummy he kicks and kicks so fast... if he could just roll into a ball instead of balancing on his tummy he would be crawling in no time.

He is also totally in love with Lilly. The other day he was crying because I left the room (oh, yes.... separation anxiety at it's finest) and I asked Lilly to go give Noah kisses. She went in and kneeled down next to him and started talking and he just burst out laughing. It was SO cute!

He got his most recent and hopefully final synagis shot on Monday and he has his 9 month well baby check up tomorrow. Can you believe it? Yesterday Noah turned 9 months!!!

I promise to post pictures soon.

Monday, March 10, 2008

A Haircut

According to the recent poll, more people thought that Noah's hair at least needed a trim. So that is what he got. Yesterday I pulled out the scissors and trimmed his hair (big sissy Lilly got a trim too)!

Stay tuned for pictures.

Saturday, March 8, 2008

A Different Milestone

Yesterday was a different milestone of sorts... Noah went the whole day and only pooped once! All day I kept waiting for the inevitable stinky pants... but it never came.

Even when he woke up this morning there was no poo.

But after he ate, he finally went. And get this... it was the FIRST brown poop he has EVER had!!

I guess we are a little too excited about poop at out house.

Friday, March 7, 2008

Noah is Doing GREAT!

No news is good news right?

Yes, this time it is. Noah is doing great! He started acting normal again and eating like a champ. He also started rolling over both directions. He LOVES his new found freedom. He also realized he could use his voice for more than just screaming. He is now starting to jabber all day. And like to do it REALLY loud whenever I am on the phone.

I posted new pictures of him over at Memoirs of a Mommy. Go check them out!

P.S. I just went in to get Noah up from his nap since he was yelling. And I instantly started to laugh... He had pulled his pants down around his ankles. Lilly can't even do that by herself! The little turkey!

Sunday, March 2, 2008

Baby Binaca

Noah has very bad breath.

I don't know if it's due to his meds or his nasty formula (he still uses and will only eat the Nutramagen) but either way... it's gross. Sometimes I can't quite figure out what it smells like but yesterday it smelled like the cheese you get in the handi-snack cheese and crackers. Quite foul when it's coming from your child's mouth!

I've tried wiping out his mouth (gums and tongue) with a wet wash cloth but it doesn't help. I would think maybe he had thrush but I don't see any sign of it. (Or I would give him the Nystatin he used to LOVE).

Shane says we need to Binaca the Baby... I can just imagine how well Noah would like that!

I just put a little Nystatin in his mouth and guess what magically appeared??? A white rash all over his tongue! He DOES have Thrush!! I am totally grossed out. But hopefully this means his breath will get better.

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