Monday, October 8, 2007

My Little Fattie!

Noah now weighs about 11 lbs 5 oz. He gained weight!! And Allison was SO surprised that she even gave me a High Five! We are going to try and adjust some meds so they are easier for him to take and she even said that if he were to lose next week, we could still stay tube free for now. Since it might take some time for his body to self adjust. But he is doing super!

I did tell her that once we do the swallow study, if it shows he is aspirating, that I want to know WHY. Because there are two things that are NOT an option. One.... No more NG tube. EVER! And Two.... I don't want Stopping Feeds to be a treatment. If he is aspirating then we need to know why and we need to fix it. If the nerve by his vocal cords was damaged during transplant, then we need to know what we can do to fix it. If we have to... we can do a G-Tube because Breathing is more Important than Eating (by mouth). But that needs to be a last option. He's doing SO well that I DON't want to take that from him.

Much Love,

P.S. Please check out my Memoirs of a Mommy on a RMH update.


  1. AWESOME CRYSTAL!!! I'm so happy that Noah gained weight and he's doing so well. I'm super happy for you! I can't wait until you guys are back from Denver. It's coming up fast, YAY! Love, Jen

  2. Crystal,
    What wonderful news. Noah is surely being blessed. He has great parents who are so willing to do all possible to keep him healthy and happy. We can't wait to see him next summer. It will be wonderful for all of you to be together with your families for Thanksgiving and Christmas holidays. A wonderful gift from above for all of you. We love you. Aunt Marilyn and Uncle Bill

  3. Yeah! Noah IS a cute chubby thing. Can't wait for more squeezing!
    Love Mom and Dad

  4. I am so happy for you! What wonderful news for you guys!


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