Making Progress

My insurance company is giving me a major headache right now.

They told me that since we do Noah's OT and PT (Occupational and Physical Therapy) through Home Health, that I wouldn't have a copay.

Now they are telling me I do... including having to back pay all the past visit.

$30 a visit x 2 times a week x every week since last November = sickness in the pit of my stomach.

So while I try and get things worked out, I had to cancel his current appointments. I'm going to try and get him signed up for Early Intervention but even that costs us money.

In the mean time, we have all been working very diligently with him and he is making good progress. It seems he has reached a developmental breakthrough recently. He's learning to pull himself up and scoot his knees under him. He seems SO close to really crawling on all fours and not just dragging his belly. He's learning to communicate much better. He doesn't talk really well, but I've learned to decipher Dada, Babaa, Mama, Ball, and signing All Done. Even the look in his eyes seems a bit more aware.

It's so fun and wonderful to see things "click" and the light turn on. He gets SO excited. It just thrills me.

Insurance, on the other hand, Not so much.

Finally!!

Today, my sweet precious boy finally said... Mama!!

Celebrating One Year

In Honor Of The Donor That Saved Noah's Life.

Be a hero. Be An Organ Donor.

To Our Donor Family

One year ago today you gave me the greatest gift someone could ever have given me. You gave my baby life. You gave him the heart that I couldn't . You gave me the chance to watch my son grow and experience life.

I have been unable to find any words that adequately express my gratitude. Even thank you just isn't enough for what you have done for me, for my family, for Noah.

My heart breaks when I think of the price that has been paid, the loss you have endured. I carry that pain with me every day. I am humbled to know that in the midst of your heartbreak you could still find the strength to give the gift of life to a complete stranger.

Since I haven't found the words yet, please know and try to understand that the depth of my gratitude is overwhelming. Thank you for saving my baby and giving him the heart I could not. Thank you, Thank you.

May God bless you and yours everyday for the gift you have given us. May you find comfort in knowing it will never be taken for granted.

Pictures of Noah

Confusion

I haven't been able to get a hold of Alison this past week so I have no idea still what the plan for Noah will be. He's still on all his meds. I think he's suppose to come off the Imuran but since no one has officially told me "Stop the Imuran" I just keep giving it to him. I also don't know what the plan is for his "stiff" heart. Hopefully I can get a hold of her before we go on vacation next week. I really would love to reduce his immune suppression before we venture out into the world. It also might help him get over this HORRIBLE cold he just can't seem to shake. The Dr told me it was allergies but our sweet dear friend Brennon is sick now after he came over with the same symptoms so it has to be a sickness and not allergies after all. If I can reduce Noah's immune suppression he just might be able to finally kick this thing in the bum.

Anyways... other than being sick, Noah is doing good. I took his to get his hair cut the other day. Unfortunately it was right at nap time and he didn't make it through the entire cut. So I paid for half a hair cut and it looks horrible. I'm going to have to fix it before we vacation. owell.

Not The Sickies Again!!

Noah is sick again. He sounds so horrible. He can barely breath. Even though I've given him his inhalers and Tylenol and have a humidifier round the clock... he sounds like he has croup. Poor kid. After all he has been through.

It's been kind of going on for months. It sort of swells. Gets really bad then slightly better then really bad.... Last Ped appointment we decided if it didn't get better we would try an antibiotic.

I actually think he might have strep this time. But we'll see. He has a nurses appointment tomorrow morning to get his immunizations but I think when I take him I will post pone them until he feels better and then ask for a strep test.