Tuesday, September 11, 2007

A Faithful Man

When Dee Dee told me that Noah would need to go back to the Cath Lab, I cried. I was so worried. I told Shane we needed to pray that everything would go ok and that Noah would be alright. Shane's response? "Forget that! I'm praying he won't need to have it done."

Well, I married a faithful man. Noah's cath visit was canceled.

We went back to Clinic on Thursday and he was doing great. Allison could feel his pulses and his top and bottom pressures were not too off and his O2 sats were great top and bottom too. So, she consulted with Dr. Pietra and he said to keep it scheduled but to come in the morning and he would examine him and make a last minute decision. So Friday morning came and Dr. Pietra looked at him and felt his pulses and canceled it. YES! I was so happy and relieved that I was almost giddy.

Now, he still has a Co-Arch, that hasn't changed. But the thought was, according to the echo's its not terribly bad yet. So the pressure mean is about 20-25. When going off pressures they don't go to Cath until it's in the 40's. Then if they were to balloon is, how much of a difference would they make? Taking it from 20 to 15? That's not enough to risk a cath. But since they couldn't feel his pulses they thought they didn't have a choice, but since they really are there... there isn't the urgent need to rush treatment. There is still a possibility that it will need to be done in the future, but there is also a possibility that as Noah grows, so Co-Arch will get bigger and not be as narrow.

One thing I did find out was that the narrowing isn't at his suture site. It's on the part of his Aorta that he was born with. This upsets me because I was told that they thought one was there and that they would use the donor aorta and replace that region as well.... guess they didn't. But I need to ask more about this because I'm not quite sure.

A few other interesting things to note:
~ Baby Beckham is now HOME!! That's right! 3 weeks after his heart transplant and he is doing great! No oxygen, no feeding tube, and only 2 meds. Talk about a living miracle! You can see this cute little bug at his website. Click Here.
~While reading Beckhams update, I discovered his has a similar symptom that Noah has been having... he doesn't pee for 8 hours or so, and then totally wets through his diapers. It was discovered that Beckham has what is called Hydroceles. What this is I have NO idea.... yet... I need to Google it and do a bit of research. But I mentioned this to Allison and we looked it up in her medical book and we now suspect that Noah also has a communicating Hydrocele. (THANK YOU Scadlocks for the information) I tried to make an appointment with urology but the soonest I can get in is Oct 24th and I hope to be packing to go home around then so I am going to wait and make the appointment at Primary Childrens in Salt Lake. The urologist that Allison consulted with said that wasn't a problem because they won't operate on that anyways until 6 months. (I am hoping they say he doesn't have it though cause I really don't want and Noah doesn't need any more surgeries). But I finally found out that he can be circumcised but not until he is one. Then he will have a surgery for it. But to avoid increasing his risk for rejection, they don't want to do anything like that until he is one year post transplant. No biggie
~I want to send a HUGE thank you to those of you who have prayed for Noah this past week. I am so sorry this post is so delayed. I had the lucky pleasure of my parents visiting and then I had to go back to work (yes, I am now working from Denver) so my time has been limited. But rest assured, it was your prayers, faith, good thoughts, and love that have once again given us a miracle. I love you all!

P.S. Noah now has his own website. The new link is www.NoahsAdventure.com but you can continue to use the Blogspot one if you prefer. They will both take you to the same place.


  1. Crystal, I'm so happy to see an update! I'm on here all the time looking for one, but also know you have lots of important things to do! I'm so glad that Noah didn't have to go to the Cath lab and will continue to pray he won't have to go at all. We're eagerly waiting for you all to be able to come home. WE MISS YOU! Love, Jen, Gary, Kya and Brennon

  2. I am so relieved that Noah didn't have to have the cath procedure. I have been anxiously waiting to hear how it went. What a blessing.
    It would be so bizarre if Noah has the same peeing problem as Beckham.
    Take Care,


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