Another visit to the Cath Lab

Yesterday Noah had to visit the Cath Lab again to have a hole in his heart stretched. The hole is between the left side and the right side of his heart. We all are born with one but it eventually closes. The Drs wanted to make his bigger to help relieve some of the pressure on the left side of his heart. When they went in, the Surgeon said his left ventricle is the largest he has ever seen in a baby this size. The pressure is building up so badly due to the small aorta that it's stretching it like a balloon.

If the procedure ends up helping his pressures they should be able to ween him off the vent soon. If he isn't able to be weened then thats a bad sign. The Dr said depending on how he does over the next few days will be a good sign if he will be able to survive until a donor heart is available. Thats scary for me because today he had a hard time. Every time I went to the Hospital, they ended up needing to bag him (help him breath) because he was so pissed off.

While they were in the cath lab the Dr also found that some of the veins going into his lung are really small. We are not sure if it's caused by the pressure from the enlarged heart or if they are truly stenostic (too small like his Aortic Valve). If its not caused from him heart thats very bad because there isn't much they can do to treat it and it usually doesn't have a good outcome in the long run. But he said not to even worry about that right now because there are much more important things to deal with at the moment. And we won't know for sure if the large heart is causing the problem until he gets a transplant.

Every day it seems it becomes more and more critical for him to get his new heart right away. I pray several times a day that if someone finds themselves in the worst situation imaginable that they will at least have the compassion to donate their organs to save someone elses baby... To save my baby.... and that Heavenly Father will bless them for their charity.