Thursday, March 26, 2009

Knock Knock

I'm knocking on wood.

I think Noah's nose may have ceased leaking for the first time in almost 3 months.

He had been sick for so long I was starting to worry. Being immune suppressed and having a donor heart can make for a less than stellar combination when mixed with nasty viruses and bacteria.

The diarreah? Still visiting. It doesn't ever go away. It just gets a bit better. This kid has had 3 non-liquid poops in his entire life. I went back to soy milk after 2 bottles and his foam poop cleared right up. I think it's the extra fat in the dairy that he can't tolerate.

He is making great progress on his speach too. He isn't saying more words really but you can see his desire to communicate and he tries. He surprises me each day with how much he really understands.

Today I tried to lay him down for a nap without giving him a bottle first (he gets several bottles of soy and carnations each day to make up for the food he won't eat). He adores his bottles and this made for one very upset and tired little man. He instantly started crying and saying Ba. I told him I would go get him one and he immediately stopped crying (for being able to instantly turn it off he sure sounds like it's a real cry). When I came back I asked what he had done with his binky and he point to the small space between his crib and the wall. I can't reach back there and I was frustrated. "Noah, why did you throw it back there?", I said. He looked at me, shrugged, and grunted something that really sounded like "I don't know." I chuckled. I couldn't help myself. When I picked him up to sit in the chair for his bottle, he raised both arms above his head excitedly said "Ya!".  I tell you, he surprises me more everyday.

When he woke up from his nap, Lilly was in the bath tub. Some how I had the misguided idea that he could see water and not insist on getting in it.  He immediately proceeded to try and take his clothes off while saying baa (for bath) over and over. When I wasn't quick enough for him, he let me know it.

He is doing ordinary toddler things and yet they are so extrodinary in every way. I can't help but see everything he does as a miracle. I'm sure he doesn't mind when he gets away with being a stinker.

4 comments:

  1. Glad his nose cleared up! GORGEOUS by the way!

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  2. I'm glad he's starting to do some feisty big kid stuff!!

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  3. YOU KEEP ON SEEING EVERYTHING HE DOES AS A MIRACLE...SOMETIMES WE DON'T SEE MIRACLES BECAUSE WE ARE TOO BUSY LOOKING FOR THEM.. HE IS AN AMAZING LIL BOY AND WE ARE CHEERING RIGHT ALONG WITH YOU!!!

    RHONDA LYLE - SC
    MOM OF ZEB (2) AORTIC STENOSIS

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  4. Hey... poor guy. Mia has had a stuffy nose too! Stinkin meds!

    I have a question for you. How do you dose your cyclo?? Do you just put the syringe in the bottle? There has to be a better way... just wondering if that is what you do. All of the "inserts" disintegrate.

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