Comments on Noah's Adventure: Health Update

I hadn't seen this update but Tyler can't ...

2010-08-31T16:05:33.321-06:00

I hadn't seen this update but Tyler can't regulate his temperature either. He also doesn't sweat. When he is outside he turns red like Noah and he can't cool himself down. He doesn't have "solid" poop either. He never has. Part of the reason we can't get him to go to the toilet is because it isn't solid. There is no pushing for him.

We have to keep the house a certain temp and we get to watch him outside. We worry that the temp won't be able to come down and he will have a seizure.

Thatch has the same problem. Every once in a while...

2010-07-27T17:05:19.347-06:00

Thatch has the same problem. Every once in a while I have to give him ice to chew on at the Track meets and soccer games that we are attending. He also has had chonic bowels and I have started giving him a Prevacid about every 2 days. Keeps the acid down (as long as he doesnt eat watermelon o strawberries, he does pretty well.) He has a rough time getting warm in the cold weather as well. Difficult to maintain when he is tired or overworked. Love you!

That is great news!!! What is funny is I am waitin...

2010-07-27T16:15:46.754-06:00

That is great news!!! What is funny is I am waiting to hear back to see if I have CMV!!! That makes me chuckle!

Oh wow! Glad the other two have been ruled out bu...

2010-07-27T14:44:59.906-06:00

Oh wow! Glad the other two have been ruled out but yikes on the temp thing. Hope they can get it all sorted out because I am sure that has to be a little stressful for you! Praying!!